Ad Lib

In the wee morning hours, Kinley once again declared that she was done with having a feeding tube up her nose and taped to her face. On her second attempt, she successfully pulled it out. The nurses let her have it her way and, so far, it is still out.

Our favorite level two nurse recommended us for a couple feeding changes and our nurse practitioner signed off.

First, she’s been switched off the high calorie, high protein formula that has been brutal on her stomach. Now she’ll get the normal premature formula that she’ll go home on. We’ll be monitoring her weight to see how she does.

Second, she’s gone ad lib. Kinley now gets to call the shots on when she eats and how much. She just can’t go more than four hours without eating and has to intake a minimum volume for the day.

If she can meet all the benchmarks, she could be punching her ticket out of here soon™. But, there are a couple procedures coming up — including her third eye exam — and we hope they don’t set her back.